Privacy Policy

The National Haemophilia Council owns and runs this website.

We are committed to protecting your privacy and take the security of your information very seriously. We aim to be clear and transparent about the information we collect about you and how we will use that information.

This statement covers:

• the role of the data controller
• what we use your personal data for
• cookies on the website
• the transfer of personal data
• your rights

The data controller

The HSE is the data controller for all personal data that is collected and used by this website. A data controller is the legal entity that determines how and why personal data is collected and used.

Our headquarters is located at:

Dr. Steevens Hospital
Steevens Lane
Dublin 8
D08 W2A8

What we use your personal data for

Any personal data we collect from you on this website will only be used to:

• give you a better user experience
• keep our website secure
• analyse visitor traffic and how people use our website
• send you newsletters and information notices about health campaigns and promotions
• get your feedback on the website
• process a complaint

We will not use the data we collect about you for any other purposes without asking for your consent.

We may use anonymised data to analyse, plan and improve our services. We may track activity on the website, such as where visitors stop using the website.

We use your IP address for website security purposes and keep this separate. We do not collect IP addresses for analytics purposes. We collect website analytics data that is anonymised and aggregated.

You can withdraw your consent for analytical cookies at any time by clicking on Cookie Settings in the footer.

Cookies on the NHC website

Cookies are small files that are created and saved on your phone, tablet or computer when you visit a website. They store information about how you use the website, such as the pages you visit and how you interact with the content. If you use the social media buttons on our website and allow the cookies from the companies that own these platforms, they will collect information about you.

Cookies are not viruses or computer programs. They are very small so do not take up much space.

Web chat services on HSE.ie use cookies to make the service work properly. These are anonymous cookies that cannot track you while you use other websites.

Transfer of data

We use analytics tools to collect information about your use of this website. Part of this information includes your IP address, which is considered personal data. We use anonymised IP addresses for this website. No individual can be identified by their IP address.

We do not transfer any other personal data about you outside the European Economic Area (EEA). If in the future, we need to transfer your personal data outside the EEA, we will comply with Chapter 5 of the General Data Protection Regulation (GDPR).

Your rights

Under certain circumstances, by law you have the:

• right of access – you can request a copy of the information that we hold about you
• right of rectification – you have a right to correct data that we hold about you that is inaccurate or incomplete
• right to be forgotten – you can ask for the data we hold about you to be erased from our records
• right to restriction of processing – where certain conditions apply
• right of portability – where certain conditions apply, you have the right to have the data we hold about you transferred to another organisation
• right to object – you can object to certain types of processing such as direct marketing
• right to object to automated processing, including profiling – you also have the right to be subject to the legal effects of automated processing or profiling
• right to review - in the event that we refuse your request under rights of access, we will tell you the reason
• right to withdraw your consent – where you have consented to receiving emails or newsletters you may withdraw your consent at any time

If you want to exercise any of these rights contact the Data Controller.

When you send a request, we will need to confirm your identity. Once your identity has been confirmed, we will give you your information free of charge. We may charge a fee if we believe your request is clearly unfounded, excessive or repetitive.