World Haemophilia Day Sunday 17th April, 2016

Sun, 17 Apr 2016


Sunday 17th April, 2016

April 17th is celebrated as World Haemophilia Day across the globe by Haemophilia organizations. Celebration of this day is a broad step to increase awareness among the people around the world about the hereditary genetic disorder called Haemophilia.  

The World Haemophilia Day is celebrated all around the world to encourage people to improve life of Haemophilia patients and to raise awareness of the bleeding disorders.  

Supported by the World Federation of Haemophilia (WFH), haemophilia awareness day was first established in 1989.  The date of 17th April was chosen to honor Frank Schnabel the founder of the World Federation of Haemophilia (WFH), whose birthday falls on the same date.
 

Haemophilia is a condition in which bleeding is prolonged. Haemophilia is a condition present from birth and is normally inherited;  you cannot 'catch' Haemophilia or pass it onto others.
 
When a person with haemophilia bleeds, normal levels of clotting factor, a protein in the blood, causes the blood to clot and stops the bleeding. However, people with haemophilia have lower levels of clotting factor in the blood and bleeding continues for much longer periods.
 
There are two types of haemophilia (Haemophilia A and Haemophilia B).  Each type is linked to a low level of a certain clotting factor. Haemophilia A is the more common type and is linked to low levels of clotting factor VIII (8). Haemophilia B is more rare and is associated with low levels of clotting factor IX (9
 
The Irish Haemophilia Society (I H S) and the  National Haemophilia Council supported by HSE are working together to improve life of Haemophilia patients and to raise awareness of the bleeding disorders.
 
Irish Haemophilia Society:  www.haemophilia.ie