World Haemophilia Day 2018

Tue, 17 Apr 2018

Today Marks World Haemophilia Day 2018
 
April 17, 2018 marks the 28th World Haemophilia Day. World Haemophilia Day was started by the World Federation of Haemophilia (WHF) and is annually observed on the 17th April. The World Federation of Haemophilia focuses on the importance of sharing knowledge. Celebration of this day is a broad step to increase awareness among people around the world about the hereditary genetic disorder called Haemophilia.   World Haemophilia Day is celebrated to encourage people to improve the lives of Haemophilia patients and to raise awareness of bleeding disorders.
 
Numerous events have been organized around the world to celebrate World Haemophilia day, filled with educational presentations and other events that promote an awareness of the disease and those who suffer from it.  The Irish Haemophilia Society who is celebrating its 50th Anniversary this year is marking the event today in Dublin and Cork:
 
A series of prominent buildings in Dublin will be lit up red, including Liberty Hall, The Dublin Convention Centre, The Mansion House, The National Concert Hall & the Civic Offices at Wood Quay, CHQ Building & Cork City Hall in Cork City
Having secured sponsorship, renowned Irish artist Shane O’Malley, will create two artworks to celebrate 50 years of the I.H.S. – both will be unveiled today 17th April, 2018 WHD. One will be displayed at a prominent billboard location on Macken Street in Dublin and the second, a large canvas painting, will be installed in the main lobby of St. James’s hospital.
Mr. Brian O’Mahony, Chief Executive, Irish Haemophilia Society was a guest on the Ireland AM program this morning speaking about World Haemophilia Day 2018. He spoke about Haemophilia and the good news that Ireland has become the first country in Europe where every person with Haemophilia will have access to the newest generation of haemophilia treatments including Gene Therapy which offers hope for the future.
 
There are 3 Haemophilia Comprehensive Care Centres (3CCC) in Ireland and a Treatment Centre in University Hospital Galway.  The 3CCC’s are based in:
 
  • The National Coagulation Centre, St. James’s Hospital, James Street, Dublin
  • Our Lady’s Children’s Hospital, Crumlin, Dublin
  • Cork University Hospital, Wilton, Cork
 
The Irish Haemophilia Society (IHS) and the National Haemophilia Council (NHC) supported by the HSE work together to improve the life of Haemophilia and to raise awareness of bleeding disorders in Ireland.
 
For further information regarding Haemophilia you can contact the Irish Haemophilia Society:  www.haemophilia.ie or Ms. Gráinne Leach,  Chief Officer, National Haemophilia Council, Health Service Executive, Mill Lane, Palmerstown, Dublin 20 Tel 01 6201708.  E-mail: grainne.leach@hse.ie