World Haemophilia Day 2020

Fri, 17 Apr 2020

Today is World Haemophilia Day.  The day is celebrated annually on the 17th April the date of the birthday of Frank Schnabel, founder of the World Federation of Haemophilia. Since 1989, World Haemophilia Day is the day the whole of the bleeding disorders community comes together to celebrate the continuous advances in treatment and to encourage improvements in the lives of persons with Haemophilia and all bleeding disorders.  The theme of World Hemophilia Day 2020 is “Get involved”. It’s a call to action for everyone to help drive the WFH vision of “Treatment for All”.

The National Haemophilia Council (NHC) and the Irish Haemophilia Society supported by the HSE work together to improve the lives of persons with Haemophilia and to raise awareness of bleeding disorders in Ireland. The Irish Haemophilia Society provides a range of support services to those living with Haemophilia and other bleeding disorders in Ireland. 

There are 3 Haemophilia Comprehensive Care Centres (3CCC) in Ireland and a Treatment Centre in University Hospital Galway.  The 3CCC’s are in the following hospitals:
 

  • National Coagulation Centre, St. James’s Hospital, James Street, Dublin
  • Children’s Health Ireland at Crumlin, Dublin
  • Cork University Hospital, Wilton, Cork


The I H S are hosting a webinar today at 3pm today on the topic of “Covid 19” and the implications for Haemophilia services with Dr Niamh O’Connell, National Director and Consultant Haematologist at the National Coagulation Centre, St James’s Hospital. This follows a successful and well attended webinar earlier this week with Dr Beatrice Nolan and the Haemophilia team from Children’s Health Ireland at Crumlin on the same topic for parents.  The webinar will be chaired by Mr Brian O’Mahony, Chief Executive, I H S.

For further information regarding Haemophilia you can contact Ms Gráinne Leach, Chief Officer, National Haemophilia Council grainne.leach@hse.ie or the Irish Haemophilia Society:  www.haemophilia.ie